 i think my 2 year old son may have autisim.
Elise Jardine (14 Feb 2005 9:39)
Hi
my 2 year old son still cant talk or feed himself and still needs his food mashed up. Were on a waiting list to see more speach and language therapists, occupational therapists, physiotherapist, audiologist and orthoptist.
Hes very behind for his age and in my opinion hes showing nearly all the signs for autisim. Is it possible that i am right or is my son to young to have autisim?
Its so frustrating because i know that there is something wrong with my son but have to wait on a 6 month waiting list to see different kind of specialists.
Is there more i can do at this stage?
Thanks
Elise Jardine
Reply |
|
 |
|
|
|
 |
|
Sounds Familiar
Nick Ward (21 Feb 2005 11:25)
Elise
We know exactly what you mean. My wife Lynne has been saying for the last year that our son Andrew has had a problem. He will be 3 in Mayand is showing almost the same signs as your son. Is youe son very affectionate? Andrew is which is a sign that he is not Austic but other things he is doing put him in the "Autism Spectrum". We are on the waiting list for a multi-discipline assessment, but, that is at least 12 months. At the moment we are looking into trying to get it done privately. We are attending a seminar in Leeds in a couple of weeks and if we get any information which we feel may help you we will pass it on.
Nick & Lynne
Reply |
|
|
|
|
|
|
|
|
|
re: sounds familiar
Elise (21 Feb 2005 12:15)
Reply |
|
|
|
|
|
|
|
|
|
re: sounds familair
Elise (21 Feb 2005 12:23)
Nick Ward
Hi thanks for repliying, my son is affectionate, but shows a lot of other autistic signs. I am finally making some sort of progress. My son is on a 5 month waiting list to be assessed but i decided to contact my health visitor to tell her we were considering going private and shes worked wonders since then. She found a place in a preschool that are specialised in special needs children and also a speech therapist comes into the preschool. Also my health visitor has contacted a charity which will be contacting me soon with activities around my district for special needs children. My advice is to keep on pushing with health visitors, doctors etc because lets face it nobody knows your child like you do.
Thanks
All the best for the future
Elise
Reply |
|
|
|
|
|
|
|
|
|
re: sounds familiar
Nick Wrad (21 Feb 2005 12:28)
Elise
Sounds like your health visitor is one of the better ones. Do you mind me asking which area you are in. We are in the Wakfield area.
Nick
Reply |
|
|
|
|
|
|
|
|
|
re: sounds familair
Elise (21 Feb 2005 13:36)
Hi
were in the Waltham forest area ( London)
Reply |
|
|
|
|
|
|
|
|
|
just like
(7 Mar 2006 19:21)
Reply |
|
|
|
|
|
|
|
|
|
affection is not everything
karen (6 Nov 2007 15:15)
i have workin with autisim for the last 3 years.i know its hard though,there are poeple who are autistic and are affectionete it depends on how severe it is???.does your child do paterns or stimulated by only one thing???does he interect with you???
Reply |
|
|
|
|
|
|
|
|
|
autism
(18 Mar 2005 8:38)
Reply |
|
|
|
|
|
|
|
|
|
autism
marie (18 Mar 2005 8:58)
hi just read yur message. Ihave a three and a half year old little boy who was diagniosed with autism two weeks before christmas last year.
We waited most of last year seeing a pedetrician and then finally awaiting for his assesment. his assessment was a very difficult time for me and his dad but our son was not bothered by it.
The assesment itself was a period of six weeks were our son Jack attended the CDC and many proffessionals tried to interact with him. A lot of the assesment was us aswering long questionaires.When Jack's diagnosis was made we were given very little hope of what his future held.
Jack now attends a normal nursery twice a week and goes to the CDC twice a week. Before Jacks assesment he had lost all his speech, is still in nappies, gives very little eye contact , he is unable to iniate any play with his brother of eighteen months or any chid of his age.He has some unusal mannerisms but we love him so much.
He now is using the PECS system and doing well. He spoke two words last weekend!!!!
My best bit of advice is that you have no choice but to go with the NHS as the process and the help they need is lifelong but don't give up fighting and pushing forward. Goodluck I know how hard it is.
Reply |
|
|
|
|
|
|
|
|
|
ASSESMENT HELP IS AVAILABLE VIA NAS ORG
BEV THOMAS (2 Sep 2005 18:41)
Hi Just read all of ur messages and there are other routes for diagnosis one is www.nas.org.uk and another if in wales or near is www.dyscovery.org.uk and PARIS IS another organisation that gives a full directory of assesment services as well as support etc in your area.
If you go on the nas website there is a national number you can ring regarding assesment as well as info they can send out in the post.
What I would say is to choose one that provides support and strategies afterwards not just assesments as my local clinic offered no support what so ever after diagnosis and having waited 4 years already I now have to go elsewhere.
Also another mum hightly recommended the PEACH autism scheme to me her little boy could only rock at 2 now he doesnt show any symptoms other thatn mild speech problems so take a look she said it wasnt easy or cheap but certainly worth every penny.
Bev
Reply |
|
|
|
|
|
|
|
|
|
Reply your son
Bridgtte Hall (1 Mar 2006 12:11)
Dear Elise,
My nephew was not diagnosed with autisim until the middle of last year. He is five going on six. That was largely the fault of the mother and father. They were to young to have kids and way to immature. But once my mother got custody of my nephews she had him tested and as soon as the doctor seen him he said instantly that he was autistic. And I seen where you said your son was very effectionate and no it's not really normal for an autisim child but my nephew is but he is not a normal autistic child he is the highest level of autisim. He has all of the different kinds of autisim. He can read any book, he can work on computers and he can talk. But he is not able to write a sentence. He is loving when he wants to be,but he is also very agressive when the room gets to loud or there are to many people around. He doesn't like loud noises and he knows how to work a cell phone. He is in school and is showing alot of improvement.Keep up with the theropy sessions it will help him in the future. Where my nephew was not diagnosed for so long he is futhure behind then other children in his class. GOOD LUCK AND GOD BLESS.
Reply |
|
|
|
|
|
|
|
|
|
just like
julie (7 Mar 2006 19:24)
i hav a three year old daughter who as lots of the same problems an i think shes autistic she shows many autist spectrums and i am still awaitng more tests an yes it is frustratin as you seem to get no support. does your son sleep an imagine things
Reply |
|
|
|
|
|
|
|
|
|
son has finally been diagnosed
Elise (7 Mar 2006 20:08)
Hi, thanks to everyone who has replyed, my son has now been diagnosed as autistic and is in a special needs nursery. Hes defenetly made more progress in his new nursery than in the others he use to attend and hes also using the pecs system. Now that hes been diagnosed things are starting to move, although were trying to fight to keep him in special needs nursery at the moment because the education system wants special needs children in main stream, but we wont give up.
Thanks
Reply |
|
|
|
|
|
|
|
|
|
help and guidance required
samantha child samuel 38 months (7 May 2006 22:18)
just found this web site. my son has been recently diagnosed with a-typiscsher autismus. we live in germany i speak with sam in english. still not receiving any thearapy. while i have been waiting for the profeesionals and paper work sam has made so much progress not in his speech but is social and behavioural skills and his understanding he can now mimic and dance he listens started to react of his name plays with his older sister drinks from a glass eats alone trys to dress and undress keeps his socks shoes and clothes on outside walks hand in hand stopped trying to escape goes to the potty alone trainning to sleep without pampers. feel that prehaps is more help in england for him please send any contact details or theapy and workshops. and if someone could explain what is pecs many thanks for reading or any response i wish all the parents and children much energy love and believe that things will get better and progress
Reply |
|
|
|
|
|
|
|
|
|
Something that may help...
Jenny (8 Aug 2006 10:50)
Try this website for PDD diagnosis:
http://www.childbrain.com/pddassess.html
From what I see, the USA has the most efficient and inexpensive programs (many free) for children who are diagnosed with PDD/autism.
In Canada, it really depends on which province one lives. For example, in British Columbia, families receive CDN $20,000 per year which contribute to the cost of hiring a team of therapists to help the child. The total cost per child is around CDN$60,000-80,000 per year. Lots of Canadian parents with PDD children move to the USA out of frustration in finding the right treatment for their kids. Dr. Ivar Lovaas' (out of UCLA) program is the one recommended to parents in British Columbia.
It's so true that the sooner you get your child diagnosed and receive treatment/therapy, the better he/she will be. But in some countries/state/province, there may be a long waiting period before a child receives therapy.
So while you are waiting, I would recommend that you do a little research and start implementing some of the programs you can do at home, sort of like home-schooling until professional help arrives.
Since the autistic spectrum varies and some kids can flip in and out, if you feel in your gut that your child is not quite there developmentally and needs extra help, go ahead and be persistent. You are your child's only advocate!
Reply |
|
|
|
|
|
|
|
|
|
diet.
Ashley Wayman (28 Aug 2006 2:01)
Hi Elise
I know your situation can be very frustrating. I am an ABA (Applied Behavioral Analysis) Therapist for children with autism. I currently Work in Wisconsin USA and have seen many cases like you sons. Without an official diagnosis Not allot can be done but a special diet has helped is some of my cases. This is something that you as a family can do. It is not guaranteed results but I have seen and experienced them for my self. Although I was never Diagnosed, knowing what I do know as a professional I am conversed I as a child had a mild case of autism. And a diet change made a huge diffidence in my health. The diet is a gluten free diet. I'm sure some research on line can give you all the information you need if you choose to peruse this further. Feel free to email me with any questions you my have. I would love to help.
Best wishes With you little one.
Ashley Wayman.
Reply |
|
|
|
|
|
|
|
|
|
diet.
Ashley Wayman (28 Aug 2006 2:01)
Hi Elise
I know your situation can be very frustrating. I am an ABA (Applied Behavioral Analysis) Therapist for children with autism. I currently Work in Wisconsin USA and have seen many cases like you sons. Without an official diagnosis Not allot can be done but a special diet has helped is some of my cases. This is something that you as a family can do. It is not guaranteed results but I have seen and experienced them for my self. Although I was never Diagnosed, knowing what I do know as a professional I am conversed I as a child had a mild case of autism. And a diet change made a huge diffidence in my health. The diet is a gluten free diet. I'm sure some research on line can give you all the information you need if you choose to peruse this further. Feel free to email me with any questions you my have. I would love to help.
Best wishes With you little one.
Ashley Wayman.
Reply |
|
|
|
|
|
|
|
|
|
diet.
Ashley Wayman (28 Aug 2006 2:01)
Hi Elise
I know your situation can be very frustrating. I am an ABA (Applied Behavioral Analysis) Therapist for children with autism. I currently Work in Wisconsin USA and have seen many cases like you sons. Without an official diagnosis Not allot can be done but a special diet has helped is some of my cases. This is something that you as a family can do. It is not guaranteed results but I have seen and experienced them for my self. Although I was never Diagnosed, knowing what I do know as a professional I am conversed I as a child had a mild case of autism. And a diet change made a huge diffidence in my health. The diet is a gluten free diet. I'm sure some research on line can give you all the information you need if you choose to peruse this further. Feel free to email me with any questions you my have. I would love to help.
Best wishes With you little one.
Ashley Wayman.
Reply |
|
|
|
|
|
|
|
|
|
Diet
Ashley Wayman (28 Aug 2006 2:02)
Hi Elise
I know your situation can be very frustrating. I am an ABA (Applied Behavioral Analysis) Therapist for children with autism. I currently Work in Wisconsin USA and have seen many cases like you sons. Without an official diagnosis Not allot can be done but a special diet has helped is some of my cases. This is something that you as a family can do. It is not guaranteed results but I have seen and experienced them for my self. Although I was never Diagnosed, knowing what I do know as a professional I am conversed I as a child had a mild case of autism. And a diet change made a huge diffidence in my health. The diet is a gluten free diet. I'm sure some research on line can give you all the information you need if you choose to peruse this further. Feel free to email me with any questions you my have. I would love to help.
Best wishes With you little one.
Ashley Wayman.
Reply |
|
|
|
|
|
|
|
|
|
im worried about my daughter to
jam (16 Sep 2006 15:52)
shes really behind on her speech development but she can be affectionate the things that worry me is the speech and she does mimic me or pretend play just stacks and sorts things sometimes she is quiet for hours
Reply |
|
|
|
|
|
|
|
|
|
Resources for your son
Nancy (26 Nov 2006 3:47)
Hi Elise, I wanted to offer a few suggestions on resources that may be able to help you. Your local county should provide an "Infants and Toddlers" program that you may want to contact. They have helped me tremendously with my twins. Also, I took my son to a neurologist who did brain scans ruling out other issues. Ask your pediatrician for a pediatric neurologist and call. Or have your pediatrician call for you. That always pulls some strings. Call them and let them know the urgency. Talk to other mothers in your area. Maybe they have connections and can get you in sooner. Trust me it does make a difference in who you know. It has worked for me. May I ask what area you live in? I am in Maryland. If you are close by I could help you out.
Let me know. nancy
Reply |
|
|
|
|
|
|
|
|
|
Autisme
TC (18 Mar 2007 10:27)
Hi,
I cant say if you are right.
But there is a change, yes. And we went through that waiting list too!
So I will tell you our story:
I am a father of 2 kids. 1 daughter and 1 son. My son is healthy.
My son said a few words at age 2 but then something changed. He slowly completely stopped talking.
Also a lot of repitive behavior and yelling.
We went to a lot of specialists audiologist en orthopidist and others.
I can tell you 1 thing! There are no autismspecialists!
They all work at the symptoms and nobody really knows the cause, lot of stories yeah!
Lot of sciencetific bullshit and no practical experience. My son is no studyobject.
Its my son! He must taken care of with love and care!
I was very very very disappointed! And worried!
Till we found that ABA training..
Nowadays we work with ABA consultants. Its a training (English is not my native language, I am Dutch) to let autisme children talk. And it works!
He said almost nothing and 2 months later with 10 woman we hired with a goverment budget (PGB=persoons gebonden budget) we really see progression.
Those 10 woman for the whole week are trained regularly by an ABA consultant
We make videos and she checks them. Also monthly appointments at home.
The woman are coming at home so yes first its difficult with your privacy but soon you get used to it.
Of course my son isnt learning so fast as we want but it is something! And my son is my son.
He said almost nothing but yelling and sounds and now he is saying some words again or sounds like that!
This is the Dutch link of my ABA consultant: http://www.aba-instituut.nl/
I repeat I am just a parent! And maybe it will help you in the future. My wife and I went through a hell finding a solution for my son.
And this seem to be working!
I hope it helps you and I wish you a lot of luck and strength!
But never give up! Just continue ..not frustrated as well with care and balance!
Reply |
|
|
|
|
|
|
|
|
|
you give courage
karen (6 Nov 2007 15:23)
hi.wow your e mail was great to read.your son is lucky.i have benn working for 3 years with autistic poeple if in any way i can help,i would love to give my support for free in ant way to anyone who wishes.i am from malta.my regards,God bless. karen
Reply |
|
|
|
|
|
|
|
|
|
EIP
sabrina roush (2 Apr 2007 15:37)
Do you have an early intervention program in your state? They've helped us form as early as 15 months. We contacted them with just a script from my sons Dr.
Reply |
|
|
|
|
|
|
|
|
|
autism
Christine (5 May 2007 23:09)
i've been through what you are, my son showed signs of autism at 20 months, we pushed for a diagnosis, although the diagnosis was made when he was 3, he is'nt too young to be autistic, autistic kids don't give eye contact to strangers so look out for the sign and all the best of luck, the sooner you know the more help for you and you're son, you're not alone. good luck
Reply |
|
|
|
|
|
|
|
|
|
maybe i can help
karen (6 Nov 2007 15:11)
hi ear elise,well you only mentioned he needs his food mashed.what about,does he respond to sound?to you??does he do paterns on things????i work with autistic young children up to 32 years of age.should you need to speak,pls do so.hope to help karen.
Reply |
|
|
|
|
|
|
|
|
|
diagnosis
Hazel (17 Dec 2007 0:19)
Hi Elise,
If your child is on the Autistic spectrum, now would be a great time to begin a home programme. If you can afford to, get an appointment with a clinical psychologist and have your little boy assessed asap. Early intervention is key, I cannot emphasise that enough. If your child recieves an ASD diagnosis act straight away, from my experience home programmes are best, They are hugely taxing on a family both emotionaly and financialy but the rewards speak for themselves.They are only really sucessful if you are highly organised..which is difficult when you are stressed and worried about what the future holds. you cannot afford to wait 6 months if your child is ASD..I hope you meet the right people to help you, wishing you and your little boy all the best, Hazel
Reply |
|
|
|
|
|
|
|
|
|
ABA TUTOR available for home programmes in Somerset
Gemma (6 Jan 2008 11:48)
Reply |
|
|
|
|
|
|
|
|
|
ABA TUTOR available for home programmes in Somerset
Gemma (6 Jan 2008 11:51)
Hello,
I am an ABA tutor with two years experience of working in an ABA school in Ireland. I have sinced moved back to the UK and am in the process of setting up a home programme.
I am available for other programmes and I have transport. Please feel free to email me with any queries.
Gemma.
Reply |
|
|
|
|
|
|
|
|
|
hi
Deria (18 Mar 2008 1:18)
HI Gemma, I'm looking for an aba tutor like you for my son, 5 years. Can you please contact me so we discuss
Reply |
|
|
|
|
