 lack of resources
brenda (5 Dec 2002 20:38)
Nice to have a website specifically for Wales, it would be nice to have the resources to accompany it. For example it would be nice to have an 'advocate' in every area who could help those newly diagnosed through the'maze'. Fortunately I was blessed with the Internet and cannot praise the National Autisitc Society enough, unfortunatley we do not all have this luxury.
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Lack of resources
Mark Smith (6 Dec 2002 8:19)
Brenda - I agree - Autism Cymru have helped acheived a digital advocate through this resource - if such an advocate network exists or is planned to be created - I'm sure Autism Cymru would be happy to add their details to this site!
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lack of resources
sheena (30 Sep 2003 23:02)
You would think that living in a small country such as Wales we would be able to unite and get the services we need, wouldn't you? Unfortunately we are too rural and don't seem to communicate with each other in different areas.
Such a shame that we don't have Central conferences and meetings for exchange of ideas and learning from each other.
Maybe we should all start local societies and have an annual conference? At one time I thought Connect A family would solve this 'isolation' problem, but it never happened, Mencap seems to be too broad for us, Nas Wales is doing what? Sorry we have this forum, but whatelse are they doing to get unity in services across Wales..?
Guess the Audit inspectors were right - those who shout get the most- is that why my dd is the only one on ABA? Or that Social Services give me direct payments to buy the services she needs? Or that the Health Authority provided my AIT training course? or I can attend any course which I think might be useful to her therapy without any costs to myself? Do I shout? No I yell at the top of my lungs!
Would I like all the parents of children with autism in Wales have the same services I do? YES. Is there anyone keep an eye on who is getting what? No
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Direct Payments
Brenda Misselbrook (6 Nov 2003 21:12)
Hiys Sheena,
A parent after my own heart!!
Can you give me more info about direct payment? My understanding is it is for 18+. Is this correct?
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direct payments
sheena (7 Nov 2003 10:32)
NO, Direct payments is available to anyone on the disablity register, to purchase the care and services on their care-plan.
My DD is only 10 and I have been receiving direct payments of £555.70p every four weeks for 18 months now. Out of the direct payments money, I buy respite care, when and where I want, I buy OT services private (NHS waiting list is TOO long), I buy services of a private play-based therapist, I buy in services of a private speech and language therapist, whatever dd requires which has been assessed in the care-plan can be bought with the money, and the best of all is DD doesn't need to wait for the NHS waiting list to get round to her, she gets what she wants instantly!
E-mail me privately and I will send you the links for direct payments in return, all ring Mencap up for the CD-rom they have on direct-payments, you have to fight for it, but once you get it life gets easier!
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Help with benifits, courses etc.
Karen (13 Sep 2007 15:56)
Hi,
I know it is a long time since you posted on here...but if you do get this message please can you contact me. My son is having ABA and I am fighting for services for him. I didn't know about DD. I need some help on it all as I am totally confused! Also I want to go on ABA course so I can be a better therapist for my son.
Hope to hear from you.
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Contact
sheena (13 Sep 2007 20:08)
Hi Karen,
I had forgotten all about this forum since my last post on here!
You can make contact with me via sales@autismawarenessuk.com
and I will reply as soon as I can.
Sheena.
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Help me donate to the National Foundation for Autism Research
James (28 Dec 2007 16:52)
Check out Electripunk Blogs! We are donating 20% of the 2008 revenue to the National Foundation for Autism Research.
You can choose to donate directly from the NFAR page through the donate link at Electripunk Blogs, or you can simply check out the site, become a member, and be active on the site. All revenue is based from traffic. The more people that become active members, the more money can be donated.
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http://www.nfar.org
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